The nurse from the GI clinic called a little while ago with results from yesterday’s blood draw (which I had neglected to write about here). She said that his AST and ALT levels are still elevated (145 and 40, respectively). The AST does seem to be going up, but the ALT seems to be going down, according to the numbers she gave me yesterday when she said we had to go for another draw: AST/ALT 101/81 on 8/24, and 116/64 on 9/6. Not that this means anything to me, other than that we all still know nothing. They are referring us to a liver specialist in Cincinnati (!!). We have to do another bout with formula, 72 hours this time, and then redraw blood again.
I’m stumped. Clearly, if he really has an issue that needs addressing, yes, by all means, let’s address it. I don’t want to miss something that would lead to…what, liver failure? Jesus. But he’s still gaining weight and growing, generally happy, and does not seem ill to me. The only thing that is not textbook normal is some green poop and maybe some excess gas (and these AST & ALT levels, I suppose). I didn’t even think to ask while I had the nurse on the phone if I should bother continuing with the dairy and soy elimination or if these tests instead indicate something physiological that my diet won’t affect. I called back and left a message, but I’m guessing I won’t hear until tomorrow or maybe even Friday. They even said that the referrals aren’t quick, so it may be weeks before we see the specialist. Does that speak to the assumed urgency? If it’s not urgent, then what the fuck is the point of all this? Mike asked an interesting question – how would all of this be handled if we were uninsured? I hate to think they’re just bilking Anthem, but hell if I really know what’s going on. It’s almost a moot point. I can’t NOT continue on with their recommendations, right? I want to say that I don’t know how many more times I can hold my squirming, screaming child as they draw blood, but if I decline….what, they call Children Services on me? I think I will have to just feel like an asshole no matter what I do.
This is wearing on me. I can’t concentrate here at work. I just want to go pick him up and hold him. I’m so afraid they will tell me I have to stop breastfeeding, but I can’t understand how that would help. What the fucking fuck?!?!!
I think I’m going to take the following two citations when we go to see the specialist – I don’t know if they are completely applicable, but I can’t help but feel like they’re trying to compare his bloodwork to a standard set by formula-fed babies. I want to call bullshit, but I don’t know if I ‘d sleep any easier if I did.
Any medical-background geeks out there who feel comfortable either reassuring me or encouraging me to push for more urgent investigation? I am still so torn between not-gonna-worry-about-it and OMGCAN’TSTOPWORRYING.